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Rose’s Story: Prenatal Spina Bifida Diagnosis

Rose’s Story: Prenatal Spina Bifida Diagnosis

by Erika K Wolf | Dec 11, 2025 | Blogs, Condition, Fetal Hydrops, front-page, Myelomeningocele/Spina Bifida, News, Spina Bifida, Story

When Taylor and James learned their baby, Rose, had spina bifida, their world shifted overnight. From high-risk pregnancy care to in-utero surgery at Children’s Mercy, their story of hope, resilience, and the power of compassionate medical support unfolded.

Inés’ Journey: Life After TRAP Sequence and the Loss of Her Twin

Inés’ Journey: Life After TRAP Sequence and the Loss of Her Twin

by Erika K Wolf | Dec 8, 2025 | Blogs, Condition, front-page, News, Story, Twin Reversed Arterial Perfusion Sequence

Diagnosed with TRAP sequence, Inés’ survival came after her twin’s loss, meticulous fetal monitoring, and the expert care at CHOP. Explore the pivotal moments and life-saving decisions that shaped her remarkable beginning.

A Fragile Start, a Fierce Future: Nora and Hattie’s sIUGR Story

A Fragile Start, a Fierce Future: Nora and Hattie’s sIUGR Story

by Erika K Wolf | Dec 8, 2025 | Blogs, Condition, front-page, News, Selective Intrauterine Growth Restriction, Story

Hattie and Nora faced sIUGR in the womb, a rare condition that threatened their lives. Years later, they continue to thrive, a testament to expert care at CHOP, resilience, and their extraordinary early journey.

From Diagnosis to Toddlers: A Family’s Journey Beyond TTTS

From Diagnosis to Toddlers: A Family’s Journey Beyond TTTS

by Erika K Wolf | Dec 1, 2025 | Blogs, Condition, front-page, News, Twin-to-Twin Transfusion Syndrome

Life at home with Kaelyn’s twins is lively, loud, and full of surprises, especially after their early diagnosis with twin-twin transfusion syndrome (TTTS). Ben keeps everyone laughing with playful antics while Renny clings to mom as she juggles snacks and toddler...
A New Beginning: How Helio’s Story Shows the Power of Expert CDH Care

A New Beginning: How Helio’s Story Shows the Power of Expert CDH Care

by Erika K Wolf | Nov 25, 2025 | Blogs, Condition, Congenital Diaphragmatic Hernia, front-page, News, Story

Helio’s story highlights the strength of one tiny fighter and the impact of expert CDH care. From diagnosis to recovery, his journey is filled with hope, resilience, and extraordinary medical support. See how far he’s come.

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