A Family’s Journey with Rare Disease: Molybdenum Cofactor Deficiency Type A

A Family’s Journey with Rare Disease: Molybdenum Cofactor Deficiency Type A

The Dahab family moved to Ohio to be close to their “second family” at Nationwide Children’s Hospital. Thanks to Nationwide’s excellence in maternal fetal medicine and fetal imaging, a world-class NICU, access to genome sequencing, and rare disease experts, their boys are living longer and better lives.

Arley’s Fetal Heart Tumor Journey: How In-Utero Surgery for Pericardial Teratoma Saved Her Life

Arley’s Fetal Heart Tumor Journey: How In-Utero Surgery for Pericardial Teratoma Saved Her Life

Time was on baby Arley’s side when she was diagnosed with a rare fetal heart tumor. A narrow window of opportunity exists to remove a mass from a baby’s heart before it gets too large. But lucky for Arley, she was in a good place for the experts at CHOP to perform the in-utero procedure and allow her heart to function normally.