The landmark clinical trial CuRe Trial: Cellular Therapy for In Utero Repair of Myelomeningocele is underway at UC Davis Health. The world’s first spina bifida treatment combining fetal surgery with stem cells could change the life of a baby with spina bifida, who could otherwise be paralyzed from the waist down.
Blogs
Christian: Now an EMT decades after groundbreaking spina bifida surgery
Christian was the 14th patient to undergo fetal surgery for myelomeningocele, a severe form of spina bifida, at Children’s Hospital of Philadelphia. He is now a tall, handsome 24-year-old who recently passed his national certification to become an emergency medical technician (EMT).
Tobias, second patient to receive stem cell treatment in utero, thanks to ongoing clinical trial for spina bifida
Oregon couple traveled to California for in-utero surgery at nearly 26 weeks gestation to repair the baby’s spina bifida defect. During the operation, doctors placed a stem cell patch on the baby’s small spine. The results are making waves around the world.
Lexi’s story: surpassing all expectations after in-utero surgery for spina bifida
5-minute read
The Badenhop family wasn’t expecting news of spina bifida and were scared and uncertain about their baby’s future. But Nationwide Children’s Hospital’s expert team offered hope — and a successful outcome for baby Lexi.
The impact of fetal surgery for spina bifida and hydrocephalus: a patient’s perspective
5-minute read
A young mom is faced with life or death decisions soon after learning her son’s diagnosis of spina bifida and hydrocephalus. She tells us her heartwarming story.
UC Davis CuRe trial awarded $15 million to support clinical trial testing stem cell treatment for spina bifida
4-minute read
Researchers at UC Davis Health are continuing to Phase 2 of a clinical trial for in utero surgery that uses stem cells to repair spina bifida defect, offering potential better outcomes.
Young Brothers Thrive after Defying Odds of Extremely Rare Hypoplastic Left Heart Syndrome
3-minute read
Zane and Zeke are happy and thriving today after experiencing impossibly long odds of developing the same congenital heart defect. The exceptional care teams at Children’s Hospital Colorado provided cutting edge expertise and unwavering support for the entire family throughout both boys’ fight to survive.
A simple blood test developed by Stanford-led researchers predicts preterm birth
2 minutes
An affordable and accessible test can provide pregnant women around the world an opportunity to understand their risk of preterm birth, allowing for healthier pregnancies and healthier babies.
How Nationwide Children’s is Optimizing Prenatal and Neonatal Care for Infants with Treatable Rare Diseases
4-minute read
Now that there is ever-growing potential to intervene medically before a child is born, it expands the utility of prenatal testing. Doctors can find ways to intervene earlier to improve outcomes.
UCSF Leads the Way in Hydrops Research
3-minute read
University of California at San Francisco Hydrops Center of Excellence leads the way in Hydrops research. Funding from Brianna Marie and Fetal Health Foundations helps experts continue to deliver the latest in-utero treatments.
Tests to expect during pregnancy: Dr. Teresa Harper tells us the six most common tests to ensure the health of mom and baby(ies)
2-minute read
Dr. Teresa Harper, Maternal-Fetal Medicine Specialist at Children’s Hospital Colorado, tells us which 6 tests are most commonly relied on during pregnancy to help guide care and minimize risks.
Ella’s life is saved after surgery for sacrococcygeal teratoma, a rare fetal tumor, at the Colorado Fetal Care Center
2-minute read
Four years later, Ella is a thriving preschooler and big sister, thanks to Colorado Fetal Care Center. The Center is the only facility in the Rocky Mountain region to offer the complex procedure she underwent to remove a sacrococcygeal teratoma that was twice Ella’s size.












