Mila’s CDH Story | From Diagnosis to Delivery – and Beyond
“In severe cases of CDH, the survival rate is ranging from less than 20% to 50%, but with FETO, we’re seeing a huge improvement in odds of survival,” said Dr. Lim. “Right now, it looks like survival rates as high as 80-90% are possible, but we’re still learning.”
Maverick’s Hypoplastic Left Heart Syndrome (HLHS) Journey
Babies born with Maverick’s heart condition and a restrictive or absent communication between the top two chambers of the heart, are born with abnormal lungs, in addition to the heart defect. In fact, most of these babies do not survive after birth. Maverick underwent creation of an opening in the top two chambers of the heart in fetal life with a stent, to allow him to be stable after birth..