Alyssa was five months along and an ultrasound revealed that their baby, Nya, had a heart condition, ductus arteriosus.
Alyssa was told that her daughter might need surgery immediately after being born.
When Brittany and Nicholas’ unborn baby, Cecelia, was diagnosed with fetal heart block at 24 weeks gestation, their lives changed immediately — in the most literal sense of the word. They lived in Montana and when their doctor first suspected the heart issue, he told...
When Charlotte first received an omphalocele diagnosis, her parents didn’t know it’s severity. After one of the longest months of their lives, they got some good news. Maternal fetal medicine specialists at the Colorado Fetal Care Center diagnosed Charlotte with an isolated omphalocele, meaning a small part of her intestine was growing outside her abdomen but it wasn’t affecting other organs.
Fetal surgery for spina bifida is improving outcomes. The fetal surgeons at Cincinnati Children’s Fetal Care Center, who have extensive experience and innovative intervention therapies to help treat spina bifida in utero, recently shared this story of hope with...
Three babies have been born after receiving the world’s first spina bifida treatment combining surgery with stem cells. This was made possible by a landmark clinical trial at UC Davis Health.
The new treatment, delivered while a fetus is still in the mother’s womb, could improve outcomes for children with this birth defect.
The annual reunion brings together a unique community of families who have shared similar struggles. Nearly all the children in attendance had been prenatally diagnosed with a birth defect, such as spina bifida, congenital diaphragmatic hernia, or twin-twin transfusion syndrome, that had potentially devastating outcomes.