I was diagnosed with fetomaternal alloimmunization, a condition in which a mother’s body creates antibodies against a fetus’ blood antigens. This diagnosis crushed us. My husband and I wanted a lot of children, and now we were left wondering whether we could even have a second.
Hydrops fetalis is a serious condition that affects about 1 in 1,700 pregnancies. For many families, answers about why this condition occurs have been in short supply because the cause is often not identified through standard testing.
“The doctor came in and handed me a box of tissues,” Katie recalls. “She was saying something about an abnormal pregnancy, shunts, abnormalities of the left leg, club foot. I was in complete shock at that point, and I couldn’t really make out what she was saying because it felt like time was suspended.”
In a span of two hours, their lives had been turned upside down.
When Brianne Jacobsen was 20 weeks pregnant, her ultrasound revealed that her developing baby’s internal organs were sticking out of its abdomen. The birth defect, known as an omphalocele, required the higher level of expertise of the UC Davis Fetal Care and Treatment Center team.
Video: Congenital diaphragmatic hernia, or CDH, and treatment options were the topics of conversation for experts from Cincinnati Children’s Hospital