When Katarina’s unborn baby was diagnosed with myelomeningocele (MMC), “It was kind of a shock, but my doctor said the best bet was fetal surgery. He referred me to Colorado right away, and he said we needed to do it as soon as possible,” she says. “That just kind of threw me for a whirlwind, and I have other kids to take care of too. It was a lot to process.”
Foundation supporters at Stanford Medicine Children’s Health gave us permission to share this story of hope for prenatal help for cystic fibrosis.
Fetal Health Foundation Medical Advisory Board member Dr. Timothy Crombleholme, MD, who leads the Fetal Care Center at Connecticut Children’s, shares six important details to consider when your baby needs fetal intervention not just to survive, but to thrive.
Performing surgery on triplets is more complex than on twins. In Tiffini’s case, there were two placentas: Hannah had one placenta all to herself, while Sophia and Isabella were sharing the other placenta, albeit unequally. Sophia and Isabella were affected by TTTS when the volume of blood flow across the connecting blood vessels between them became uneven, with Isabella getting too much and Sophia getting too little.
When faced with a severe form of spina bifida, Iliana underwent cutting-edge in-utero surgery at Stanford Medicine Children’s Health. Today she is thriving thanks to her mother’s courageous decision.
“I had the chance to give my baby a better opportunity in life, and I took it.”