Baby MJ Battles an Extremely Rare, Strange Heart Defect and Wins
The Egan family is grateful for the “enormous team” at Stanford Medicine Children’s Health who repaired baby MJ’s rare congenital heart defect and provided months of individualized care in the Cardiovascular Intensive Care Unit. Today, their baby is a thriving toddler with normal heart ventricle function.
Alexander’s Story: Expert High-risk Pregnancy Care at Stanford Children’s Health Gets Mom to the Vital 23-week Mark
Emily’s third pregnancy wasn’t expected to be high risk. But once it became clear, she went to the experts at Stanford Medicine Children’s Health. Thanks to the multi-disciplinary approach coupled with personalized fetal counseling, baby Alexander is a thriving toddler with a big smile who is living up to his warrior name.
Gastroschisis and the search for better, earlier interventions at UC Davis Health
The rate of gastroschisis, an abdominal wall defect that is often discovered in utero, has been on the rise in the US. Thanks to Dr. Geoanna Baustista and the Baby Intestines Group at UC Davis Health, research is being done to find potential fetal interventions and improve babies’ outcomes.
A Family’s Journey with Rare Disease: Molybdenum Cofactor Deficiency Type A
The Dahab family moved to Ohio to be close to their “second family” at Nationwide Children’s Hospital. Thanks to Nationwide’s excellence in maternal fetal medicine and fetal imaging, a world-class NICU, access to genome sequencing, and rare disease experts, their boys are living longer and better lives.
Saving Luka: From Albania to Ohio to Treat Posterior Urethral Valves
When doctors told the Lame family their son wouldn’t survive his serious diagnosis, they didn’t give up hope. They started to search for answers. Luckily, they found them at Cincinnati Children’s Hospital. With expert, all-encompassing care, baby Luka is thriving.
Deciding to Treat Fetal Renal Failure: Information & Support for Families from Connecticut Children’s
Treating Fetal Renal Failure is a highly personal process with many decisions to be made over the lifetime of the child. Dr. Timothy Crombleholme at Connecticut Children’s details why it’s important to have support, second opinions, and a highly specialized team.
Three Things to Know About Treating Fetal Renal Failure
Fetal care pioneer Dr. Timothy Crombleholme at Connecticut Children’s Fetal Care Center explains what families need to understand about their deeply personal options for treating Fetal Renal Failure.
Golden Hour: Expert Delivery of Babies with Birth Defects at Children’s Hospital of Philadephia
Children’s Hospital of Philadelphia is specially equipped with technology and expertise to deliver babies with birth defects. In fact they lead the nation in these deliveries. See what a “delivery room of the future” looks like.
Campbell’s Story: Cincinnati Children’s Offers Expert Treatment for Cloacal Exstrophy
Campbell Lester recently celebrated his third birthday. But during his mom's 20-week ultrasound appointment, doctors believed nothing good would come from the pregnancy. The ultrasound showed a grim picture: part of the baby's abdomen was open and organs would be...
Arley’s Fetal Heart Tumor Journey: How In-Utero Surgery for Pericardial Teratoma Saved Her Life
Time was on baby Arley’s side when she was diagnosed with a rare fetal heart tumor. A narrow window of opportunity exists to remove a mass from a baby’s heart before it gets too large. But lucky for Arley, she was in a good place for the experts at CHOP to perform the in-utero procedure and allow her heart to function normally.
Josiah’s Story: Innovative Technology Treats Fetal Renal Failure
Narina and Chris were referred to expert care at Connecticut Children’s Fetal Care Center that saved baby Josiah’s life. Other doctors were ready to give up hope. But thanks to an innovative technique to receive amnioinfusions, baby Josiah is doing well and is ready for the ultimate phase of treatment.
Renny & Benny’s Story: Fetoscopic laser surgery to correct twin-twin transfusion syndrome
Kaelyn thought she might lose both her babies when Twin-to-Twin Transfusion Syndrome entered the picture. But thanks to the “amazing, amazing people” at Connecticut Children’s Fetal Care Center, she is enjoying life with her two healthy identical twin boys and wants parents to know that there is help and hope.
Thaddeus’s Story: Beyond Open Fetal Surgery, A Spina Bifida Success
5-minute read
Ester and Samuel traveled across country and stayed away from home for months to ensure the health of their baby boy. His serious spina bifida diagnosis and mom’s cervical complications were challenges that Dr. Timothy Crombleholme accepted and triumphed over.
The McGrew Family Story: When Your Baby Has FNAIT
3-minute read
Parents aren’t the only ones who may not be aware of the dire consequences of FNAIT. Many doctors and other medical professionals aren’t familiar with the blood disorder until there’s a serious problem. Raising awareness allows for better disease management and prevention. See how the McGrew family dealt with four FNAIT pregnancies.
What is FNAIT?
2-minute read
When a baby experiences FNAIT or NAIT it’s often not discovered until symptoms appear. That’s why it’s important to know the signs and understand if you and your pregnancy are at risk. The consequences of this condition that involves a low blood platelet count can be alleviated through awareness and prompt action.
Amari & Javar: conjoined twins separated at CHOP while whole family is given special care
5-minute read
Finding out they were having twins was super exciting news for Tim and Shaneka, but finding out they were conjoined led to a whole new set of questions and a whole new path for their family. Experts at CHOP restored their initial joy and delivered the news that the babies could be safely delivered and likely candidates for separation surgery.
Once Conjoined, Now Thriving: The Altobelli Twins Three Years Later
4-minute read
Facing a complex conjoined twin delivery, the Altobellis knew they needed top notch care for their babies’ best outcome. So they turned to Children’s Hospital of Philadelphia. Not only were the babies successfully delivered, mom was also healthy and delighted by her newborn babies. Today, they have been separated and are thriving as individuals!
Meet the smallest premature baby treated by Stanford Children’s Preterm PDA Closure Program
5-minute read
When a baby is born very early, it takes a team of well coordinated care with expert skills and decision making to not only save the baby, but allow her to grow and flourish. Amazing teams of medical professionals at Stanford Medicine Children’s Hospital did just that for baby Theia and her parents.
Why fetal MRI & ultrasound images can look supernatural, but their value is out of this world
3-minute read
Fetal MRIs can produce some odd-looking images that some describe as spooky while others can’t make head nor toes of them. Leader of the fetal ultrasound team at Children’s Hospital of Philadelphia tells us why the images are so fantastical and why they are so important.
Nixon: Making remarkable strides in his development thanks to the world’s first study of its kind for spina bifida
The landmark clinical trial CuRe Trial: Cellular Therapy for In Utero Repair of Myelomeningocele is underway at UC Davis Health. The world’s first spina bifida treatment combining fetal surgery with stem cells could change the life of a baby with spina bifida, who could otherwise be paralyzed from the waist down.
Christian: Now an EMT decades after groundbreaking spina bifida surgery
Christian was the 14th patient to undergo fetal surgery for myelomeningocele, a severe form of spina bifida, at Children’s Hospital of Philadelphia. He is now a tall, handsome 24-year-old who recently passed his national certification to become an emergency medical technician (EMT).
Tobias, second patient to receive stem cell treatment in utero, thanks to ongoing clinical trial for spina bifida
Oregon couple traveled to California for in-utero surgery at nearly 26 weeks gestation to repair the baby’s spina bifida defect. During the operation, doctors placed a stem cell patch on the baby’s small spine. The results are making waves around the world.
Lexi’s story: surpassing all expectations after in-utero surgery for spina bifida
5-minute read
The Badenhop family wasn’t expecting news of spina bifida and were scared and uncertain about their baby’s future. But Nationwide Children’s Hospital’s expert team offered hope — and a successful outcome for baby Lexi.
The impact of fetal surgery for spina bifida and hydrocephalus: a patient’s perspective
5-minute read
A young mom is faced with life or death decisions soon after learning her son’s diagnosis of spina bifida and hydrocephalus. She tells us her heartwarming story.
UC Davis CuRe trial awarded $15 million to support clinical trial testing stem cell treatment for spina bifida
4-minute read
Researchers at UC Davis Health are continuing to Phase 2 of a clinical trial for in utero surgery that uses stem cells to repair spina bifida defect, offering potential better outcomes.