Shining a Light on Birth Defects Awareness
January is Birth Defects Awareness and Prevention Month—a time to raise awareness, support families navigating unexpected fetal health challenges, and highlight the importance of early care, prevention, and compassionate resources. Learn how knowledge and community can make a difference for families.
Q&A with Dr. Jena Miller: Charting New Frontiers in Fetal Medicine at CHOP
In January 2026, Dr. Jena Miller joined CHOP as Co-Director of the Richard D. Wood Jr. Center for Fetal Diagnosis and Treatment. With over a decade at Johns Hopkins, she brings expertise in minimally invasive fetal procedures, spina bifida, and TTTS. Read her Q&A on advancing fetal medicine and supporting families.
Rose’s Story: Prenatal Spina Bifida Diagnosis
When Taylor and James learned their baby, Rose, had spina bifida, their world shifted overnight. From high-risk pregnancy care to in-utero surgery at Children’s Mercy, their story of hope, resilience, and the power of compassionate medical support unfolded.
Inés’ Journey: Life After TRAP Sequence and the Loss of Her Twin
Diagnosed with TRAP sequence, Inés’ survival came after her twin’s loss, meticulous fetal monitoring, and the expert care at CHOP. Explore the pivotal moments and life-saving decisions that shaped her remarkable beginning.
A Fragile Start, a Fierce Future: Nora and Hattie’s sIUGR Story
Hattie and Nora faced sIUGR in the womb, a rare condition that threatened their lives. Years later, they continue to thrive, a testament to expert care at CHOP, resilience, and their extraordinary early journey.
From Diagnosis to Toddlers: A Family’s Journey Beyond TTTS
Life at home with Kaelyn’s twins is lively, loud, and full of surprises, especially after their early diagnosis with twin-twin transfusion syndrome (TTTS). Ben keeps everyone laughing with playful antics while Renny clings to mom as she juggles snacks and toddler...
A New Beginning: How Helio’s Story Shows the Power of Expert CDH Care
Helio’s story highlights the strength of one tiny fighter and the impact of expert CDH care. From diagnosis to recovery, his journey is filled with hope, resilience, and extraordinary medical support. See how far he’s come.
Prematurity Awareness Month: Supporting Families, Advancing Healthy Pregnancies
November is Prematurity Awareness Month, a time to raise awareness about preterm birth, honor the resilience of premature infants, and support families with educational resources for healthy pregnancies.
Turning a Frightening Pregnancy Diagnosis into a Lifeline for Families: Our Founders’ Story
A Joyful Beginning When Lonnie and Michelle Somers learned they were expecting twins, they were overjoyed — and full of hopes for their future as parents. But that excitement was soon overshadowed by a diagnosis of twin-to-twin transfusion syndrome (TTTS), a rare and...
UC Davis Surgeon Dr. Diana Farmer Honored for Groundbreaking Spina Bifida Research
Dr. Diana Farmer of UC Davis is pioneering new spina bifida treatments by combining fetal surgery with stem cell therapy in the groundbreaking CuRe Trial. Her work is transforming patient care and offering hope.
Help Shape the Future of Fetal Care Centers: We Need Your Feedback
Have you or your partner received care at a fetal care center? The Fetal Therapy Think Tank is developing national recommendations for how these spaces are designed — and your feedback can help. Take a short, 8-question survey by Oct. 28 to share your insights and help improve fetal care center design for future families.
Honor Your Baby This Pregnancy & Infant Loss Awareness Month
October marks a special time to honor the babies we carry in our hearts. Contributing writer Faith Dulany from CarryMe Health shares heartfelt insights from her personal journey, offering hope and healing through meaningful rituals.
🍭 Why The Great Candy Run Is So Much More Than a Race
The Great Candy Run is a sweet, family-friendly 5K that brings people together for fun, lasting memories—and most importantly, to support families facing fetal syndrome diagnoses.
Breakthrough in Hydrocephalus Care: Gene Therapy on the Horizon
A groundbreaking gene therapy developed at UC Davis could change how hydrocephalus is treated in children—offering hope for safer, long-term care.
💙 Honoring NICU Families & Their First, Fiercest Journey
Each year, 1 in 10 babies begins life in the NICU. This September, we recognize the strength of NICU families and the care teams who help them thrive.
Facing TTTS: Bridgette and Grace’s Story of Strength and Survival
At 12 weeks, Jackie and Trevor received a frightening diagnosis: their unborn twins had twin-twin transfusion syndrome. With CHOP’s fetal care team, a complex surgery offered new hope—and today, their daughters are thriving.
Children’s Mercy Joins the FHF Partner Network
We’re proud to welcome Children’s Mercy Kansas City to the Fetal Health Foundation Partner Network. Their expert fetal care team is helping improve outcomes for babies diagnosed before birth.
Cord Blood Awareness: Stem Cells at Birth—A Powerful Choice for the Future!
Cord Blood Awareness Month is a time to spotlight the powerful, life-saving potential of stem cells found in cord blood—and why expectant parents should understand their options.
Supporting a Loved One Through a High-Risk Pregnancy
A high-risk pregnancy can feel overwhelming and isolating—for the whole family. Discover thoughtful ways to support your loved one, with helpful resources from our partners at the Colorado Fetal Care Center.
Colorado Rockies Pitcher’s Daughter Defies All Odds: A Story of Strength, Science, and Heart
When the Gilbreaths learned their daughter had congenital heart defects, they turned to the Colorado Fetal Care Center for hope, answers, and a path forward. Learn how early diagnosis and specialized care changed everything for baby Lainey.
Why Knowing Your Fetal Center’s Capabilities Could Save Your Baby’s Life
Supporting Advanced Fetal CareThe Fetal Health Foundation proudly supports the work of maternal-fetal surgery centers that offer critical, often lifesaving care for babies diagnosed with complex conditions before birth. These centers provide a range of services—from...
How to Recognize Perinatal Mood and Anxiety Disorders — And When to Seek Help
Understanding the Emotional Challenges of Parenthood At the Fetal Health Foundation, we know that the journey to parenthood can be filled with joy, but it can also bring emotional challenges—whether it’s your first baby or your fifth. Adjusting to life with a new baby...
Holding Space for the Whole Story: Maternal Mental Health in the Fetal Health Community
This May, we’re honoring Maternal Mental Health Month by recognizing the emotional challenges of fetal health journeys. You’re not alone—let’s rewrite the narrative together and prioritize mental wellness—because your mental health matters.
A Journey of Hope: Overcoming Congenital Diaphragmatic Hernia (CDH)
A family’s journey through the challenges of CDH led them to life-saving care at Children’s Hospital of Philadelphia, where their son received expert treatment and a second chance at life.
Do you or your loved one qualify for a study evaluating an investigational medication for FNAIT?
The FREESIA-3 research study is investigating a new treatment for FNAIT, a rare condition that affects a baby’s platelet count during pregnancy. Pregnant women at risk may qualify for free study medication, care, and health evaluations for mother and baby. Learn more about this opportunity today!